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Showing posts from January, 2023

Let’s Make Some Noise

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 It’s been awhile since I last blogged.  Here’s a summary of events for anyone interested, I finally had my PET scan approved and was able to get that done on December 23.  Results weren’t horrible..oncologist said he is, “cautiously optimistic”, so that is a positive.  There was some evidence of healing in several areas of my spine with one spot larger in my cervical, (neck), area. Radiologist and Dr. Gitau both felt it could be healing also instead of progression.  We hope to repeat the scan in 2-3 months, depending on what BCBS and their pencil pushing monkeys decide is needed. I suggested going up to the recommended dosage on my oral chemo from 400-600mg to hit it a little harder and Dr. Gitau very much agreed on that idea.  I initially started on that dose but it bottomed out my neutrophils and white blood cells putting me at high risk of infection. I just completed my first 3 week cycle on that dose and made it through!  I will have labs on Tuesday to see how it affected my count